“We are passionate about helping those in need”.
Abdul El-Dib - Director
Ryder is a happy, easy-going and intelligent boy who loves Lego and is destined for a career in engineering. He loves playing with his idol - his six-year-old brother Caden. He had just turned 3 when he was diagnosed with stage 4 high-risk neuroblastoma, a rare and very aggressive childhood cancer.
His parents were turned away by GPs eight times in 5 weeks, all telling them that he had a virus and to ‘wait it out.’ By the time he got to the hospital, he had a 6cm tumour in his stomach, and 100% of his body was riddled with cancer. Ryder was in excruciating pain and went straight from being on Nurofen every 5 hours, to around-the-clock pain relief with nerve pain medication and a morphine drip.
From their initial relief to know what was wrong with Ryder, they were quickly plunged into a time of dark days, as they began to learn about neuroblastoma. As you can imagine, it is not a good card to be dealt.
Neuroblastoma is a cancer of newly developing nerve cells, and as such typically hits very young children. It is the leading cause of death from cancer in children under 5.
This cancer often initially responds well to chemo but is insidious and very difficult to hold off for good. Despite a gruelling 18 month treatment to clear kids and try to prevent a relapse, the average time to relapse is only 9-12 months. Once a child relapses, not only do treatment options dwindle, but it is almost always terminal.
While many other cancers are experiencing better cure rates in recent times, neuroblastoma survival rates remain at only 40-50%.
Ryder’s best chance of not relapsing, and therefore surviving, is a trial running in the USA which is showing extraordinarily good results in keeping kids clear for years longer than before.
If you can help Ryder, please donate to:
Account Name: Ryder Jarrad Grace
Account Number: 736800924
or click below to visit their
Channel 7 Feature:
Join the private group or follow on Facebook to follow Ryder’s story and/or for updates on fundraising events.
Amali was born on the 26th September 2013. Her delivery was urgent, and due to unexpected and unpredictable complications in the pregnancy, her identical twin did not survive. Amali was immediately transferred to the Neonatal Intensive Care Unit at the Royal Children Hospital, where she was given life-saving blood transfusions and intensive nursing care.
For the first few days Amali was fighting for her life, supported by both her family in Australia and her family in Sri Lanka.
As a result of her traumatic birth, at seven days old Amali was diagnosed with “severe hypoxic brain injury”, which is presenting as Cerebral Palsy at this stage and below the 3rd percentile head circumference. The specialists believe she will have ongoing developmental issues and delays.
It is known from current brain research that it is these early years that are so vital for the brain to make new connections and continue the process of healing the damage so that Amali can grow to her full potential.
About Cerebral Palsy
Cerebral Palsy is an umbrella term that refers to a group of disorders affecting a person’s ability to move. It is due to damage to the developing brain either during pregnancy or shortly after birth.
Cerebral Palsy affects people in different ways and can affect body movement, muscle control, muscle coordination, muscle tone, reflex, posture and balance. Although cerebral palsy is a permanent life-long condition, some of these signs of cerebral palsy can improve or worsen over time. People who have cerebral palsy may also have visual, learning, hearing, speech, epilepsy and intellectual impairments.
Your generous donations will help cover the costs of her ongoing travel to Philadelphia USA for her Intensive Treatment Program.
If you can help Amali, please donate to:
Account Name: Amali Samanelli Chandrasekara
Account Number: 465637
Find out more about Cerebral Palsy
Please consider donating blood. Click here to find out where: www.donateblood.com.au